Monday, April 4, 2016

a six month canvas

10/4/15... 4/4/16...
A six month canvas.
I am not the painter. This is not my canvas. 

A steady 30 years of my mom's chronic illnesses and pain, hospital stays, and emergency room visits drench the background. Subtle and unimposing as any 30 year event becomes.

Bold, shocking strokes are made in too little time to be absorbed, understood...
my son "targeted" and hurt at school, 
my daughter hospitalized for ten days after a call in the night that I never wanted to get, but hoped would come to me if ever needed... a nightmarish night that I would trade for 30 more years of suffering with my mother, 
my father's sudden death with little reconciliation, 
my income gone...

Anchors lost and I drifted...

Visible... who chose to show up, reach out and believe in us. Felt... who didn't. Disorientation, deep sadness, and deeper exhaustion - a black coat. 

Today, still, a lingering ache in my belly and chest arises, sticks. I sit with this. I try not to react. I observe. I study the canvas. 

Because in this moment I am grateful. I am grateful that just this moment is easier, and there is felt relief in others' words, the tears, the breath...

In this moment I remember that I love the stars at night; cherish my children laughing, hugging and shining; enjoy a run before the birds wake; make time for a silent sit with a cup of tea before the sun rises. This moment I breathe...

I am not the painter. This is not my canvas. 




  

Sunday, November 1, 2015

"I love you. Keep going."

"It was nice to see the ease and comfort in your teaching... weaving your own experiences into your teaching... Welcome officially as a Mindful Schools Certified Instructor, Dawna!"

After my participation in the Mindful Schools Year-Long Certification program and submission of my teaching video and other supporting materials, I received the news of my certification two weeks ago in the midst of the most challenging time my family has ever known. The news came without any fanfare or deserved celebration. The irony is not lost on me. 

Even while I continue to share the mindfulness lessons with elementary students, I am struggling to find any ease and comfort in my own life as most everything I know is being challenged. I am finding it painful to be with the amount of fear, sadness, confusion, anger and exhaustion of the likes I have never known before. Doubts about my own skills and wisdom creep in and I lose my way and make mistakes. 

Sometimes all I can do is to breathe, to allow for spaciousness, to wait for the softening, to search for self-compassion, to come back to the breath and the body when I lose my way - again and again and again - and to somehow trust that just this is enough, for me, for my family. I must continue to be courageous and vulnerable enough to share my experiences so that I may find the people who will hold me up - sometimes literally - and bring me comfort when I am without my anchors and drifting away, and think I cannot go on.

This - all of this - is the practice that blesses me and for which I am deeply grateful. The practice, the teaching, the people - friends, family, strangers, therapists, students - all softly impress upon me the words of one of my teachers, "I love you. Keep going."

From one of my mindfulness students | May 2014



Thursday, April 23, 2015

growing in greensboro

Forgive me AdventurHER for it has been seven months since I have written. I've been having adventures, but just not writing about them. Again, the concerns I have about my words being insufficient to convey the fullness of my experience have delayed my writing about my latest adventure.

Cheryl Strayed, adventurer and author of "Wild: From Lost to Found on the Pacific Crest Trail" writes, "Writing is hard for every last one of us... Coal mining is harder. Do you think miners stand around all day talking about how hard it is to mine for coal? They do not. They simply dig." So, I will dig in and I will write about growing in Greensboro.

Earlier this month I traveled to Greensboro, Alabama with my martial arts school - Revolution Martial Fitness - as part of a small, alternative martial arts convention called Alabama Martial Arts Build-Vention (Build-Vention). While there we partnered with Hale Empowerment and Revitalization Organization (HERO), a non-profit community development organization, to work on community improvement projects. In this rural town of approximately 2,400 people in one of the most impoverished parts of the state known as the Alabama Black Belt, I found a richness of space, warmth, trust, and hope in the projects and the people associated with HERO, the Build-Vention, and RMF.

Pam Dorr & HERO (Hale Empowerment and Revitalization Organization)
The force behind HERO is community activist Pam Dorr. After leaving a designer job at Victoria's Secret 12 years ago, Pam moved to Greensboro to study with architect Samuel Mockbee who emphasized the importance of social responsibility in architecture, especially in poor, rural areas. Pam is now the Executive Director of HERO.

I recently read Pam described as "Mr. T + Mother Teresa = Pam Dorr. A force of nature and a rural innovator." After only spending a small amount of time with her, I agree! She is most often seen with a smile and thoughtful expression on her face or, with sweet tears in her eyes if she's speaking about her gratitude and the work of HERO. She always seems to be truly listening to what you have to say. She makes you feel valuable and capable. And she gets it done - whatever IT is - and inspires you to get it done too!

I thought we had come to Greensboro to just help HERO build an outdoor bread oven - a microbusiness to empower residents with new skills, to provide a community gathering place, and to help fund the work of HERO. I quickly learned how expansive and deep the work of HERO and Pam is. On our first night in Greensboro, Pam spoke about the efforts to build apartments for the elderly and those with mental illness, and affordable, single-family homes; to provide GED and work training programs for students who drop out of high school; to support other microbusinesses such as a thrift store, the Pie Lab and HERObike (They make bikes out of local bamboo!); to build The Helium School where HERO will host community meals, after school programs, and workshops; and so much more. There is a lot of good going on in Greensboro under the direction of Pam and I was grateful to play a small part in it, along with others from RMF at the Build-Vention (Read more about what we worked on below.). You can hear more of Pam's rich, emotional story of homelessness, loss, family, home, art and inspiration in this TED Talk "How Nature Can Nurture a Town".

Tom Callos & Alabama Martial Arts Build-Vention 
Tom Callos started Build-Vention ten years ago as a way to take the positive values learned in the martial arts dojo (e.g., kindness, community service, patience, persistence) out into the world, and as a way of elevating the character of martial artists. As he writes, this is a "good story" and you can read more about it here.

The Build-Vention gathers martial artists, families and activists to sleep, train, learn, cook, eat and clean together in the Greensboro Baptist Church, and to work together on HERO's community improvement projects. Approximately 75 people joined this year's Build-Vention. It was a good experience to share and hold space with this community of people who are attempting to give something back to the world. Two of the activists who joined us this year were environmental activist Julia Butterfly Hill and community activist Keshia Thomas. Julia is best known for living in a 180 foot, 1,500 year old California Redwood tree on a 6 foot by 4 foot platform for two years to prevent a logging company from cutting it down. Keshia, an African American woman, is best known for protectively placing her body on top of a white man alleged to be a Ku Klux Klan supporter while he was being beaten. Both of these warm, engaging women talked about listening to and honoring your true voice, and finding and acting on an issue that inspires you. It was an honor to serve with and learn from these inspiring women. I urge you to learn more about their stories and work, or just come to next year's Build-Vention and get to know them in person! You might find yourself making delicious vegan dishes with Julia, walking in Selma with Keshia, or hanging out with them in the church's youth group "cave!"

The Youth & Revolution Martial Fitness
Finally, I want to write about the RMF youth with whom I was fortunate to share this adventure and about some of the work we did and experiences we had while in Greensboro.

Sensei Paul, my boss, friend and Sensei, asked me to go on this trip as the RMF Program Director and as one of three adult chaperons to 10 adolescent students. Before we left, we raised $6,000, which was almost half of all the money raised for the Build-Vention and went directly to HERO! The majority of that $6,000 was raised by the students in various efforts throughout the year.

We worked on a variety of projects involving saws, hammers, drills, wheelbarrows, shovels, paint brushes and more, and benefited from many different experiences during our three days and four nights in Greensboro, including
  • building the brick patio for HERO's outdoor bread oven, 
  • making outdoor furniture from pallets,  
  • working with Mr. Greg and two young, confident women from HERO to make repairs on the outside of Mr. Henry's house - the first house built by HERO ten years ago, 
  • organizing boxes for a jewelry project with a fabulous AmeriCorps NCCC volunteer,  
  • making and delivering lunch with Julia, 
  • helping to load 2,300 bricks onto Mr. Greg's truck for use in a downtown building renovation,
  • redesigning the front windows of the downtown HERO thrift shop, 
  • cleaning out a fire-damaged home, 
  • eating dinner (fried catfish, cheese grits, coleslaw, jalapeno hush puppies and homemade ice cream!) and playing volleyball with the local Mennonite congregation,
  • visiting the Selma to Montgomery National Historic Trail with Keshia,
  • training with martial artists from around the United States and Canada, and 
  • eating a lot of pie and drinking a lot of sweet tea at the Pie Lab!

It was a gift to witness these youth stepping out of their comfort zones, and diving into the shallow and deep ends of community service work. Some were making their third trip to the Build-Vention, others were making their first trip, and some were literally getting their hands truly dirty for the first time. They brought different strengths to the work and engaged with the experience in unique ways. I truly enjoyed working with them, getting to know them better, and solidifying my role as their "dojo mom" with my good-night hugs :) You can see pictures from our journey HERE.

I left Greensboro believing in myself, that I can do a little something to make the world just a little bit better. I left with my heart and mind more open. The experiences, and the familiar people, voices and spaces grounded me, returned a piece of me and my Oklahoma-Kansas home to myself. For all this I am blessed and grateful. Thank you Greensboro! I hope to return next year!



Thursday, September 11, 2014

sitting in silence, sitting with myself


Out beyond ideas of wrongdoing 
and rightdoing there is a field.
I'll meet you there.
When the soul lies down in that grass
the world is too full to talk about.
~Rumi


I have been back from my week-long retreat with Mindful Schools for almost a month. Despite others' urging, I have procrastinated writing about that experience because I wasn't sure I could do it justice, or convey the depth, fullness and uniqueness of the experience. I am going to write about it anyway and accept that what I write will not be perfect.

In February I wrote about my resolution of not committing to any endurance events for the first time in over a decade. This was foreign territory that I didn't quite know how to navigate. I wanted to create more time and space to be more spontaneous, adventurous and giving. One outcome of this was accepting my 14 year old daughter's invitation to do a Spartan obstacle course race with her. Finishing that two and half hour race with her on a hot August day was one of the most memorable moments of my life with her, perhaps that is a topic for another post!

Another resolution I made was to work on my mindfulness practice, which, I suppose, could be considered an endurance event of another kind! I wanted to open myself up further, to dig deeper, to find more courage to explore what makes me vulnerable. I wanted to be more fully present with myself and, as a result, with others. While I did try to make a little more time for sitting and guided meditations this winter and spring, my commitment really began in earnest when I was accepted into the Mindful Schools year-long teacher certification program. This program is a continuation of the Mindful Schools training I received three years ago, and began with a week-long, kick-off retreat at Pumpkin Hollow Retreat Center in Craryville, NY in August, coincidentally the day after completing the Spartan race with my daughter!

I had never been on a week-long retreat nor experienced more than eight hours of silence in a retreat setting. Many won't have the luxury of doing a silent retreat; they will not have the time, resources or desire. For example, I found out upon my return that not even my therapist or physician have been on silent retreat. Often when people find out that I did my first three day silent retreat, they respond "I could never do that!" I don't try to convince them that they could; I simply smile and try to acknowledge their belief. My expectations for this week-long retreat were very few. I expected some days of silence, some volunteer work related to my scholarship status, and some days of curriculum training. That is all. I was blown away by what was offered and what transpired!

The week began with three days of silence with a group of about 80. I was expecting and wasn't worried about the silence; I was looking forward to my first multi-day silent retreat. Obviously I wouldn't be talking or using my cell phone and I was okay with that. What I wasn't expecting were the other instructions of no looking or smiling at or holding doors for others; no journaling; and no reading. We were instructed to go within, to work on deepening our own well, and to sit with whatever arose. These long days began at 7am, ended at 9pm, and consisted of group and individual sitting and walking meditation, shared silent meals, rest periods - time to walk the labyrinth, swim in the stream, rest in the hammock, etc. - and talks from our teachers. That is all and it was a relief - a relief from the feeling that I needed to fill my time with something seemingly more worthy like reading about the practice I was engaged in. I simply needed to do the practice, to be! The not looking at or smiling at others when we passed was a little awkward, but otherwise the silence was, for the most part, good and restful and peaceful and freeing.

Not much emotional "stuff" arose for me during those silent days or, rather, the little bit of stuff that did come up was familiar territory. The physical sensations I experienced were somewhat challenging. In the beginning, even just sitting for 30 minutes for several periods a day brought pain to my back and then a bit of anxiety (an ache in my gut, a crawling-out-of-my-skin sensation) related to not knowing when the closing bell would finally ring! And there were the few beginning sits when I felt more sleepy than I had in a very long time; I sat and struggled and fought the repeated urges to fall asleep and fall over on my meditation cushion and the person peacefully meditating beside me! Eventually I settled in, felt less pain, anxiety and sleepiness and had moments of pure presence, calm and joy.

I was truly surprised by how my relationship to food transformed during these days of silence and for the remainder of that week. Pumpkin Hollow has an organic garden and serves only vegetarian meals. I thought I might not eat as much since I wasn't exercising, and restricting food is a familiar, although sometimes tricky strategy for me. But when the delicious, healthy food prepared lovingly by Chef Paris and crew kept arriving, I accepted it; I welcomed all of it like a nourishing, joyous gift with very little struggle. In the absence of other usual activities and the presence of deep, inner work, I began to crave the full experience of enjoying food. When I came out of silence, I tried to convey to Paris and the rest of the kitchen crew, some of whom I had been working with during my volunteer duties, what a surprising gift and blessing the food was. Paris smiled, gave a slight bow and said, "The food is made with a lot of love." Indeed, I felt I was consuming and being filled with love!

Finally after two and half days of silence, our skilled teachers, who guided us through the silent days, facilitated our coming out of silence with meaningful, deep questions that sometimes led to painful reminders. There was a sudden, breaking open of stuff that I didn't remember was in my well. We were confronted with questions, reminders and discoveries about violence, rejection, chronic illness, depression, suicidal thoughts, abortion, miscarriage, eating disorders, lack of self-compassion, discrimination, unworthiness, disappointment, worry, fear and more. It was incredibly powerful to be sharing these discoveries with others. Our teachers instructed us to look around the room and ask ourselves if someone here might support us, if we could be vulnerable enough to allow that support to happen. At times it was difficult, and sometimes impossible to speak because of the intensity of my emotions, my sobbing. I was not the only one who was completely exhausted at the end of that third day and then thought more days of silence looked good about then! Alas, remaining open and curious, sitting and moving non-judgmentally with all of this, with whatever arises IS the practice!

On the last day, all 80 of us sat in a large circle in a big, red barn, passed around one ball of green string, circled it several times around our wrist, and passed it along. Our neighbor then quietly cut the string and tied it to our wrist. We each spoke our intentions, what our little string bracelet would remind us of. This string I still wear represents this beautiful community that was created in just one week, and holds the shared reminders and intentions of all those in the group. For me, it speaks the following words - spaciousness, healing, relax, "I love you, keep going." (Thanks for those latter words, Vinny!)

I am deeply grateful to the teachers - Megan, Chris, Vinny and Pam for creating a powerful space where a beautiful, vulnerable, loving community of human beings, of educators can come together and learn to be more mindful during that week and throughout the year. I am deeply grateful for those who showed up at this retreat with all of their courage, honesty, ideas, sense of humor and support. And I am deeply grateful to Tina for making it easier for me to take this time away from home. What a blessed gift! I'm curious to see what will unfold over the next year!


Beyond ideas & expectations, 
beyond judgment. 
Silence is where we can rest 
and experience the fullness of everything 
and nothing. 
~dawna 


Saturday, February 1, 2014

surviving january

I haven't written since my October ultramarathon. I was coasting along, taking a bit of a sabbatical from training and the vigilance that it requires. I resumed training after a few weeks and then the Wednesday before Thanksgiving came along and I started on another medical journey with my mom. Oh the things I learn from being on this road with her! Why is it that during times of stress when we most need to do the things to take care of ourselves, we forget to do so? I had a difficult time finding the time, space and energy to exercise, eat well, sleep enough and meditate. My mom and I covered new, difficult territory around creating boundaries and balancing choices to take care of ourselves and others. It is sometimes difficult - or rather, gut-wrenching - to be honest with the ones we love. We both do the best we can and are buoyed by those around us. In mid-January, my mom finally had the last procedure of what began in November and felt relief from her pain for the first time since then. It was a relief for us both and I was grateful. 

Then began the matter of surviving the rest of January. January - bitter cold, dark, a month that is supposed to be filled with new promises, but I still felt bogged down. The thing that was weighing heavily on me was the number of unexpected deaths of parents in my town in January alone. Five parents in their 40's and 50's died unexpectedly either from unknown causes or car accidents; one of them was a father of Brea's friend. Then Casey and I got into a minor car accident where I was taken by ambulance to the emergency room and then released that night. Events such as these force you to stop and reflect, to recalibrate. This month, more than ever, before I parted from my children when dropping them off at school or their dad's or wherever, I paused with them and told them, "Look into my eyes. I love you!" I'm making more of an effort not to take our time together and our futures for granted. I suppose this is a great gift I was given in these bittersweet, dark, cold days of January. 

It is February 1st. The sun is shining brightly and it is a relatively warm 30 degrees out this morning. I am turning my attention to resolutions - continuing my fledgling martial arts training that was sidelined in these last nine months by illnesses, procedures, life events and other training; not committing to any endurance events so that I can create more time and space to be more spontaneous, adventurous and giving to myself and to others; and working on my mind and my mindfulness practice, which is actually an endurance event of another kind. In the words of Herbie Hancock, I will try to "have the courage to be vulnerable enough to explore the stuff (I) don't know." I will try to learn what it takes to do the things I need to take care of myself during times of stress and to dig deep into the stuff that makes me most vulnerable. Only in this way will I be able to be fully present and helpful to others. 

I'll end with this image taken by Deanna of Tina and I summiting Mount Greylock on New Year's Eve Day. This was our second annual New Year's Eve Day hike after summiting Mount Monadnock on New Year's Eve Day 2012. It is an interesting way to end one year and to begin another - to cover territory that many don't choose to on that particular day of the year, to commit, to persevere, to dig deep, to adhere hand warmers to your underwear, to eat cold pizza in a cold hut at the top of a mountain :)

Mt Greylock Summit | December 31, 2013
Wishing you the best in your adventures this year!  

Monday, October 21, 2013

becoming an ultramarathoner!

"I learned long ago that in endurance sports, when dark times come, the only way to keep going is to block out all thoughts, especially when they turn negative, and stay in the moment. You focus on the here and now, not the finish, not anything else. Breath, feel it, step, repeat." 
~Thor Kirleis, Trail Animals Running Club (TARC) member, from his blog post 
"In the Moment: The TARC 100" about doing the TARC 100 miler

On Saturday, October 19th I became an ultramarathoner! I finished a 50K (or 31 mile) trail run at the TARC Fall Classic - not even close to the 100 miler that Thor and other folks attempt and complete, but a remarkable adventure and accomplishment nonetheless! I honestly believe I could not have done it without the variety of support shown to me over the last few months and during the race. I wasn't even sure I would make it to the start line when I was sidelined by biopsies and excisions, then at home with my sick little guy the day before the race. I was so grateful, though incredibly nervous to start that race with Amy at 8:15am on a beautiful, cool, New England fall day.

The TARC Fall Classic offers four distances. Of the 245 animals who finished the races they registered for, 70 completed the 10K, 92 completed the half marathon, 28 completed the marathon and 55 of the craziest animals completed the 50K. Amy and I took on the 50K, which was five loops of a 10K course that was described as "relatively flat" but was absolutely not for us 50K first-timers!

Loop 1 & 2
The first two loops were pretty easy. As advised before and during the race, we kept a steady, easy pace - 12 minute miles - and walked most of the hills, which often came with a lot of rocks, boulders and roots. We finished both loops 10 minutes under our goal time, which was to finish the entire 50K in a very modest seven hours. After a pit stop with our pit crew member Tina who reported our time, refilled our water bottles and made sure we had something to eat, Amy and I ran off to conquer loop 3 with smiles on our faces and a little dance in our stride. We were feeling confident, although I knew from other more experienced trail runners that the next three loops would get increasingly more difficult.

Loop 3
It felt harder to maintain our 12 minute per mile pace, mostly because I started getting dizzy. I'm not sure why this happened because I know that I was fueling enough and properly. I stopped a couple of times to lean over to try to get a little more blood to my head. I took lots of deep, mindful breaths and did my best to simply stay in the moment. I think it was during this loop that we ran across several large groups who were not part of the event but instead were out for a casual meander through the woods. I would politely say, "On your left, on your left" hoping that they would move to the right as I was running up behind them. When that didn't work, Amy would yell, "That means move over to your right!" It felt like she was my personal security guard out there! I was so incredibly lucky to be doing this with someone. Amy had never run more than eight miles when I asked her at the beginning of the summer to do this event with me, but I knew she had the right attitude to take this on. About four miles into this loop, Amy told me, "I think this will be my last loop, hon." I started to get a little discouraged because I knew how much I was relying on her company, energy, sense of humor and attitude. She was being smart though. The deal was for either of us to drop if we felt we were going to incur severe injury, and Amy was having severe pain in her feet, ankles and knees. Despite her pain and my dizziness, again we came in ten minutes under our goal time for that loop! 18.6 miles done! This was the longest Amy had ever run! She set a distance PR and I was so proud of her! I still had 12.4 miles to cover. I refueled. I was worried and tears started to form. I looked at Tina and told her, "Tell me something." She said, "You have two legs. Get going." So I did.  

Loop 4
I knew I had to find another way to approach this loop by myself. I felt miserable. I was not having fun. So, I decided to change my approach and I began walking very fast, looking up, enjoying the scenery, smiling, taking more deep, mindful breaths and reminding myself that it was my choice to be out there and I could do it any way I wanted. I also used a tip given to me by one of my Team Unthinkables teammates, which was to imagine my favorite place and all the details about it. I imagined this moment:

Brea & Casey playing on Maho Bay beach | February 2013
I was really looking forward to seeing Brea and my mom who arrived while I was running this loop. (Casey was at a soccer game.) I focused on that.  

Just as I finished loop 4, I saw Brea with her head full of whipped cream from a church pie throwing fundraising event she had just come from. I was so happy to see my girl and my mom! I thanked them both for being there and the driver who brought them, Becky, one of my bootcampers and new trail running buddies. Then my attention turned towards who, if anyone, would run the last loop with me. My knee had started hurting and I hadn't seen too many people left on the course. I knew that I would benefit from some company on my final, lonely loop. I looked to Amy. She said, "Your wife has volunteered to run the last loop with you!" I was a little surprised and incredibly relieved. I don't think she imagined she'd be running any of this course with me after she almost divorced me for making her run the course earlier in the week! I guess she figured that she could keep up with my pace that was slowed down by 25 miles!

The Last Loop
I was so grateful to have Tina and her sense of humor out there. We didn't see anyone on the course! We walked a lot. My very sore knee prevented me from running much, especially down any hills, which became painful to even walk. I can push through being tired, but I refuse to push through pain, especially in my knees. We talked a lot. I enjoyed hearing about her experience as a spectator and we made up ridiculous events for the most extreme obstacle course we could imagine, which was entertaining, comical and distracting. It was nice to share some of this event with her in this way. As we got within two miles of the finish, I started smiling and saying, "I'm going to finish! I'm going to finish! I'm going to become an ultramarathoner!" I already started getting emotional about finishing my first ultramarathon, something I once could never imagine doing. I made a deal to run the entire last mile around a big, open field. It was very slow. There were a couple of inclines. I did not stop. I was so hopeful for the finish line. I saw Brea running towards me 100 yards from the finish. I was so happy! I started running faster. I took her hand, lifted it over my head and sprinted to the finish, smiling, 7 hours and 13 minutes after I began! This was the absolute best part of the race! Then I bent over and started sobbing with pride, relief and gratitude. I saw Jim, whose idea it was for me to run an ultramarathon, and he gave me the best hug and didn't let go while I cried and cried. He said, "I never doubted you." Indeed. I ran some trails with him a couple of times while training. He did not give up on me. Even when I told him I didn't think I could do the ultramarathon because of my biopsies and excisions, he was patient and said, "Let's see how things go." And then I hugged my mom, who reminded me again, "You always underestimate yourself. I'm proud of you!" And then I hugged Tina and Amy and Becky. Every one of them a significant part of my crew who helped me to finish my first ultramarathon! THANK YOU. THANK YOU. THANK YOU. It was a remarkable adventure!

Momma

Brea


Tina





Jim










Amy


Becky

















Post-Ultramarathon Feet :) 

And thank you to every one else who made donations to my Team Unthinkables campaign for the Scott Rigsby Foundation and who supported me in other ways, as well - Sharon, Shona, Ann-Marie, Brian, Teri, Jen, Mag, Denise, Jeff, Keith, Drita, Cindy, Beth, Josh, Dana, Ben, Skyler, Somya, Kelly, Chris, Deanna, Charlotte, Nancy, Paul, Thor and Kim. THANK YOU.

"Whatever you meet unexpectedly, join with meditation." 
~ from The Seven Points of Mind Training

"Only those who risk going too far can possibly find out how far they can go." 
~T. S. Eliot

Monday, September 9, 2013

running with stitches, finding a way

"It doesn't matter ... what you come up against because none of it's going to be pleasant. You're hardly ever out there going, 'Oh, my God, isn't it a beautiful moon tonight?' The crew is feeling that. But you're kind of suffering through the whole thing. So my thought was, 'Everything you come up against say -- and this is why people are relating to my story -- all of us suffer heartache. All of us suffer difficulties in our lives. And if you say to yourself 'Find a way,' you'll make it through." This is what 64 year old Diana Nyad said last week after swimming for 53 hours to become the first person to swim the 110-mile Florida Strait from Cuba to Florida without a shark tank. She dealt with jelly fish, sharks, vomiting, dehydration and more to accomplish this on her fifth attempt over 30 years. "Find a way." This is a great mantra.   

On the same day that I read this quote last week, I got a phone call from my doctor that would leave me trying to find my way through something new. Let me back up a few weeks to July 29th. 

On a Monday in late July I went to see a dermatologist for what I thought would be a routine visit. I noticed a suspicious mole and my primary care doctor wanted me to get a second opinion. I totally expected the dermatologist to reassure me that it was nothing; instead, she said she wanted to remove and biopsy the mole for melanoma that day. I was a little shocked of the suddenness and possible severity of this. Melanoma is the rarest, but deadliest of the skin cancers. I agreed to have the mole removed until I heard that I wouldn't be able to exercise or, specifically, swim for two weeks and would need to be seen 10 - 14 days after to have stitches removed. I then went on to explain how I had a two mile fundraising swim to tackle and a week-long family vacation in Nantucket to enjoy and that getting a biopsy would interfere (Hello Dawna. Having cancer would interfere with life! But I had my mind set.). The doctor reluctantly allowed me to leave the office without a biopsy, but with one scheduled for as soon as I got back from Nantucket. I proudly did my first two mile swim while raising some money for The Scott Rigsby Foundation and I thoroughly enjoyed my time with my family and in the water in Nantucket, though well slathered in sunscreen and covered up. I gambled it would be nothing and that four weeks would not make a difference. I don't think my mother was too happy with this decision.   

Four weeks later, on a Thursday, I had the biopsy and left the office with several stitches in my shoulder, a melanoma pamphlet in my hand, worries in my head and my mom by my side. The doctor told me not to exercise for two weeks. I told her about teaching bootcamp and training for a my first 31 mile trail ultramarathon in October. She could tell that I was not going to let stitches stop me from most of this. Two days later I ran 18 trail miles with my friend and ultramarathon mentor, Jim. I told him that I'd bring the needle and thread in case I popped a stitch, which is what my doctor said might happen when I told her I wasn't going to take her advice and not exercise for two weeks. Jim said he'd bring a stapler instead - much quicker and more efficient. Staple me up and get back on the trail. Popping a stitch became the least of my worries on that difficult 3 1/2 hour run, which was a convenient distraction from a possible melanoma diagnosis. Then I waited for the results, which I was told might take up to two weeks.    

After a week of waiting, I called the doctor's office last Thursday morning. She called me back that evening and started in with a lengthy explanation of what I had. She told me that the mole was "severely atypical," which is one step away from melanoma and that she wanted to do another, larger excision of around four inches within the next few weeks. Although, from what I've read, most severely atypical moles do not become melanoma, they are often treated as such by aggressive dermatologists to account for what my dermatologist called "a margin of error." This is gray area. It's the best of bad news, I suppose. Now I am uncertain about the next steps. Do I get the next excision? Probably. My mother would likely kill me if I didn't! When do I get it? If I get it prior to October 19th, I likely won't be able to do the ultramarathon since the incision will be larger and take longer to heal, which means a recommended four weeks of no exercise (but now you see how I deal with doctor's recommendations). Can I time the surgery during one of my low mileage weeks and get back on the trails after a week? Can I find a way through and around this? Should I use this as an excuse to relax on the weekends and not do my 3+ hour training runs that I struggle with and postpone becoming an ultramarathoner another year? I just don't know. I don't like the gray areas without a clear answer or path. A few friends and family are advising me to get it taken care of as soon as possible, including, interestingly, my ex-husband who reminded me that it only takes one melanoma cell to begin to wreak havoc on the body. Tina is solidly supporting whatever decision I make. My mom has started calling on mutual friends to lobby me to do what she wants me to do - to get it taken care of as soon as possible. She's as stubborn as me. 

Stupid cancer. I didn't think navigating decisions around detecting and preventing cancer would be one of the adventures I'd write about in this blog because, really, cancer isn't much of an adventure that anyone enjoys. Alas, it seems that cancer is breathing down so many people's necks these days, including mine. Stupid cancer is quietly knocking at the door. I do not want to let it in like Rumi's guest*. It will sit on my front porch determined to teach me its lesson - to be fully engaged and grateful, to be humble, to reassess my priorities, to redefine myself, to find another way. 


*Guest House
by Jelaluddin Rumi

This being human is a guest house.
Every morning a new arrival.
A joy, a depression, a meanness,
some momentary awareness comes
as an unexpected visitor.
Welcome and entertain them all!
Even if they are a crowd of sorrows,
who violently sweep your house
empty of its furniture,
still, treat each guest honorably.
He may be clearing you out
for some new delight.
The dark thought, the shame, the malice.
meet them at the door laughing and invite them in.
Be grateful for whatever comes.
because each has been sent
as a guide from beyond.